My life changed dramatically and forever when I lost TJ.

I welcome you to follow along as I adjust to my "new normal".

It is not all puppies and ice cream but it is my life....real and honest.

Sunday, July 26, 2009

Online Cancer Community

I know I talk of it often but the online cancer community has so much to offer in the way of information and support. Just this weekend I met someone on Twitter who has already given me a wealth of information and resources. If you are on Twitter it is and I recommend following her.
Having said that there is a down side to the online cancer community. Many of those I follow are cancer survivors, some are cancer patients and some are cancer caregivers like myself. I have been following the blog of a young girl named Michelle who was diagnosed at age 26 of lukemia. She posted this past June 29 that she had a set back and her doctor told her that day that she only had 4 to 6 weeks left. I can't imagine hearing that at 27 years of age. After her post that day there was one more a few days later and then nothing until yesterday. It was a post written by either a friend or family member but it was letting us all know that Michelle had passed early Saturday morning. To my surprise I took it kinda hard. I guess
just reading about a person's daily life you begin to feel like you know them. As much as it upset me to hear the news I know that I learned a lot from her strength and positive attitude. Rest in peace Michelle. This is a link to a slideshow of a weekend she spent with family and friends in the beginning of July.

On a happier note, TJ is still doing fantastic. Friday night we went to Dave and Dena's and hung out with them for a bit. Saturday I cleaned out the office supply closet and TJ worked on his car. Today of course we watched the race. He still needs naps but otherwise is feeling great! On Friday night when we got home we forgot to put the lotion on his back and forgot to take a hydrocodone. Well, Saturday morning when he woke up he had a headache and his back hurt. We won't be missing any more doses of anything anymore, bad mistake on my part. Had wine at Dave & Dena's and temporarily forgot about cancer. Some caregiver I am!!!! We got back on schedule on Saturday and all is good again though.

TJ has one more week before his next round of chemo. I anticipate a very good week for him this week. Our weather has cooled a bit and with the car being back home he can work on it more. When we see the Oncologist on August 3 we will find out if he intends to do two additional rounds of chemo. We are hoping not but I guess if that is what it takes we will buck up and deal with it.

Battle On TJ, Battle On

1 comment:

  1. Hey TJ,

    Glad to hear you're doing good. Hang in there!!



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